I saw a new doctor in 1997 and mentioned I had these horrible headaches, the effects, etc. in the course of the exam. I thought there was nothing they could do for them as I had had them already decades. She immediately sent me to a neuro who proscribed some magic that worked within 36 hours. I could not believe it. I truly did not know life worked that way. It's easy to be upset with big Pharma but they also do produce some absolutely game changing assistance some times. Mine do not work all the time, as you gathered, but they work a lot of the time which is far better than where I was for so long. I so deeply feel for the people who can't seem to find any relief, no matter the meds. I had a friend, no longer with us, who could not get relief, period. I have another friend in SD who has struggled but I gather she is doing better (get to see her first time post-Covid next month so I will check). Your sympathies are most welcome, however, as you GET IT.
I have vivid and repeated memories of my mother suddenly disappearing into their bedroom, the rest of us tiptoeing around and playing quietly, eventually Dr. Restrepo or Dr. Biaggi or Dr. Tinsley ringing the doorbell and heading upstairs to give her a shot of …. what? I don’t know. I assume it was strong stuff. She’d be down for three days with her flare-ups, mine before medication always lasted 36 hours, followed by three days of mental fog and physical fatigue. It’s such a strange thing.
Until “they” invented my magic pills, I felt like all I ever did was apologize to people for calling in sick, cancelling appointments, backing out of plans, being unable to commit, needing the lights turned down or having to stop for food or conking out in fetal position on the couch with my hands over my face. I know now that others with different chronic ailments often feel this too. It’s so alienating.
Oh how sorry I am to learn that we have THIS in common. It is indeed, like most things, something that must be experienced to be understood, and we wouldn’t wish the experience on anyone, so we make our way through life trying not to make a big deal out of it but always relieved to find someone who DOES “get it.” I was lucky to find an “as needed” miracle drug in my mid 40s that changed my life. I was able to commit to a full-time job and make plans with some confidence that I would be able to follow through. I am so sorry you are living with migraine and wish I could make it all go away. I can relate to everything you said. My mother’s migraine life was far more debilitating than mine—did either of your parents have it? How about your brother?
I saw a new doctor in 1997 and mentioned I had these horrible headaches, the effects, etc. in the course of the exam. I thought there was nothing they could do for them as I had had them already decades. She immediately sent me to a neuro who proscribed some magic that worked within 36 hours. I could not believe it. I truly did not know life worked that way. It's easy to be upset with big Pharma but they also do produce some absolutely game changing assistance some times. Mine do not work all the time, as you gathered, but they work a lot of the time which is far better than where I was for so long. I so deeply feel for the people who can't seem to find any relief, no matter the meds. I had a friend, no longer with us, who could not get relief, period. I have another friend in SD who has struggled but I gather she is doing better (get to see her first time post-Covid next month so I will check). Your sympathies are most welcome, however, as you GET IT.
I have vivid and repeated memories of my mother suddenly disappearing into their bedroom, the rest of us tiptoeing around and playing quietly, eventually Dr. Restrepo or Dr. Biaggi or Dr. Tinsley ringing the doorbell and heading upstairs to give her a shot of …. what? I don’t know. I assume it was strong stuff. She’d be down for three days with her flare-ups, mine before medication always lasted 36 hours, followed by three days of mental fog and physical fatigue. It’s such a strange thing.
a person who doesn't confront it has no idea how debilitating it is.
Neither parent seemed to have it so my brother and I share theirs.
Until “they” invented my magic pills, I felt like all I ever did was apologize to people for calling in sick, cancelling appointments, backing out of plans, being unable to commit, needing the lights turned down or having to stop for food or conking out in fetal position on the couch with my hands over my face. I know now that others with different chronic ailments often feel this too. It’s so alienating.
Oh how sorry I am to learn that we have THIS in common. It is indeed, like most things, something that must be experienced to be understood, and we wouldn’t wish the experience on anyone, so we make our way through life trying not to make a big deal out of it but always relieved to find someone who DOES “get it.” I was lucky to find an “as needed” miracle drug in my mid 40s that changed my life. I was able to commit to a full-time job and make plans with some confidence that I would be able to follow through. I am so sorry you are living with migraine and wish I could make it all go away. I can relate to everything you said. My mother’s migraine life was far more debilitating than mine—did either of your parents have it? How about your brother?
So sorry.